So lately I have just sit back to look at how the craziness of the CCSVI World has become. I too have been guilty of losing sight but thankfully because of a good friend and loving husband I was set back on the right track for the good of our cause and what really matters in this.

I have recently read some outlandish, accusing statements that could get these people saying them in alot of trouble because they do not know the facts, they are not Doctors and most importantly they are not puting the proactive cause to help move CCSVI forward and pitting MS Patients against one another and that is wrong. Like I said I have said apologies to those I had run ins in the past and we are all human but saying sorry can go a long way its never too late to do the right thing.

That is why I felt the need to stand up for our cause and say something and be a true MS/CCSVI Advocate. I strongly suggest unless you know the facts about something then we need to not be spreading gossip or hear say/rumors. We need to protect all of these amazing IR's who are helping us whether they are your DR or not that doesn't matter. We are not Dr's and we need to remember that. Alot of posts online are not facts we need to base our own opinion on what we have done or looked into for ourselves. Everyone will not agree with each other and that is only human nature that's ok.

I have had many emails from a Blog that was posted yesterday and caused alot of stress for many MS friends and that is why it got removed because it was not coming from a factual source and caused alot of distress to very good Doctors all across the USA. A few IR's specifically asked they not be posted only their information shared by word of mouth between us to protect them from IRB.

I know a few CCSVI Advocates have left our "circle" so to speak because of "in house" nonsense and its time to step back and focus on the goal here not the struggle because can you blame them for not wanting this undue stress in their lives? I sure don't. We all still have MS and stress isn't good for any of us. This non sense has made me step back a few times because its gets too much. I know I am not alone in feeling this way.

We have all come into one anothers lives because of a common bond and goal and we don't have to like one another but we need to keep focused what our goal is and for myself my main priority is to help educate more in Canada about CCSVI and where to go abroad for it because its not happening anytime soon here unfortunately. Also I help others who wish to go abroad through the CCSVI Foundation of Canada If I want to know something about a certain DR doing this CCSVI Procedure I will go directly to that Dr or his practice/clinic and ask him straight from the source.

Lets all try to remember why we got involved in CCSVI advocacy in the first place.

Have a great weekend everybody:-)

Sincerely,

Michelle Walsh

MS Patient and Advocate from Saskatchewan, Canada