BUT my big news is I went to California with (my 21yr old) for the CCSVI procedure
AND I have had these improvements thus far
yesterday, I went to a beach for the first time this year!
Usually, where I live it is way too hot for me to do so..
last year, I had to retreat to the A-C in the house and remain inside for the "60 days" of summer.
my legs still turned blue/purple in the water that I managed to
wade" into...a couple of feet and I actually didn't "freeze" in fear at the descent like I usually do..
I went down the stairs holding the railing, which I haven't done for a looong time:)
shaky, but still did it!! (up and down)
I still have the (Upthoff's syndrome) heat/cold intolerance
this weeks summary of the trip and results
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Got back in the evening of the 30th of August!
Went to Kelowna/ YVR on the way down and along the coast to Orange County.(WestJet)
On the way back;
WestJet went from Santa Monica/John Wayne Airport over eastern California a bit of Oregon then
over Nevada/Idaho/Montana/Washington up to Southern Alta. and in to Calgary.
Flew at 41,000 ft and got there early for a small layover and then to Kelowna.
In Costa Mesa******************
Nice hotel, nice places to be scanned and then for the procedure.
Taxis were ~sort of okay..
great time with our daughter..(my travel buddy)
who cared deeply and took charge" of the "fragile, old Mommy" and take charge she did, like a linebacker, not soon to be forgotten!!
There was one nurse from "H" but all the others were adorable.
So I have so far significant improvements in things like quicker speech/better balance
can jump up with both feet at the same time
can get out of the car MUCH easier
can whistle whole songs
up and down stairs faster
type faster
cognitive fog is gone
heat/cold intolerance still here (Upthoff's syndrome)
vision a little better but still waxing/waning in the left eye
going to start physio on Monday
my left side musculature has atrophied over the last few years; got to build it up again:)
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I was on the edge between RRMS and SPMS and so it was time to go for something
not related to pharmaceuticals, which I always get the side effects from and no benefits
I am pretty excited about the improvement thus far and hopeful for more