Vickie Marie Butlerposted toCCSVI in Southwestern Ontario
Terminology CCSVI Explain
Neurodegenerative diseases. MS, ALS, Parkinsons, Alzheimers and others. Prior to the discovery of CCSVI, Medicine had very little or nothing to offer in most cases. Neurologists simply treated symptoms as much as possible and documented the deterioration of their patients. In all cases, these conditions are fatal. In all of the noise, this fact seems to be often overlooked. The real face of these conditions is in the hospitals and extended care facilities. Many of them are in no position to fight the system, nor should there be a requirement to. Those who have died unnecessarily and those who will die are the victims of an ego driven medical power struggle/turf war o Endovascular balloon dilation =
Angioplasty – Arteries,
Venoplasty or Venous Angioplasty – veins
• Concepts
Circulation of blood. Blood must move at a certain rate or the processes of delivering oxygen to and removing toxins from the cells does not happen efficiently, usually resulting in drastic consequences
Venous Insufficiency in other areas of the body – legs = ulcers, routinely and safely treated with venous angioplasty. If not treated – amputation. Why would the brain and central nervous system be immune to damage in a similar venous insufficiency situation?
• Zamboni Discovery – Probably the most significant medical discovery in decades if not centuries. Not a new concept. The idea that neurodegenerative conditions may originate in veins has been discussed since the 1830s
The Problem
• Hostile and closed minded approach to the news of the Zamboni discovery by Canadian MS neurologists and MS Society. These people have firmly painted themselves into a corner with conjecture, hyperbole and fear mongering. Case in Point: The recent McLean’s article made the group of neurologists in Calgary look foolish. There was no substance to their ‘study’. It was an anecdotal story about 5 people who went to the hospital. Insufficient detail to draw logical conclusions
• The real experts are not being consulted. Interventional Radiologists and Vascular Specialists. They need at least an equal footing to MS Neurologists.
• Simple Thing made complicated Cause/Cure Autoimmune/Venous origin – either/or. Many unsubstantiated opinions have muddied the waters along the way. The question should be: Do neurodegenerative patients improve following CCSVI treatment?
• The very idea of questioning the safety of angioplasty is ludicrous. 4-5 million procedures performed since the 70s. The most common surgical procedure and by far the safest. This includes venous angioplasty of CNS veins
The research being conducted by the Canadian and American MS Societies has been overtaken by events elsewhere. Treatment is being carried out in more than 100 clinics in 60 countries. A Conservative estimate is that more than one thousand procedures are being performed weekly
• Government of Canada, in the eyes of many, has failed to show inspired leadership on this issue. The mechanism for making health decisions seems to be broken. CIHR panel of no experts. Ignoring of international research. No government officials at the international conferences. Sense of Urgency is lacking. Political decision makers appear to be the victims of bad advice. Many Canadians are questioning what external interest groups are influencing government decision makers? CCSVI treatment has the potential to save the governments and private sector in Canada billions. The available evidence says ACT NOW, yet the government moves at a snail’s pace. Why? Stalling??
o People suffering from neurodegenerative conditions don’t have the patience to wait the usual 20 -30 years for medical paradigms to change, nor should they have to.
The Solution
1. Rationalize the government’s expert panel to broaden the scope of inquiry beyond MS
2. Use the mountain of international research proving safety and efficacy. Proceed with Phase III Clinical Trials on an urgent basis with a large patient population(000’s) in multiple centers across Canada (Note that this procedure is the one normally used for pharmaceuticals)
3. Use the mountain of international research proving safety and efficacy. Proceed with a large patient population(000’s) observational study in multiple centers across Canada. In this method, treatment is performed and the patient’s condition is followed from a before and after point of view. (Note that this method is commonly used for surgical procedures).
4. If at any time during the above research projects, the evidence clearly indicates that the benefits outweigh the risks, approve the procedure for general implementation.
BILL S-204 – DO YOU SUPPORT BILL S-204?? Do not accept any answer that doesn’t answer this question with a clear yes!6 minutes ago ·
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