Naar homepage     
Chronische Cerebro-Spinale Veneuze Insufficiëntie
Aanmelden op het CCSVI.nl forum
Lees Voor (ReadSpeaker)    A-   A+
Over CCSVI.nl | Zoeken | Contact | Forum
CCSVI.nl is onderdeel van de
Franz Schelling Website
meer informatie
  
Sunday, September 25, 2011 11:16 PM | John mcHone Volg link
I would like to first say " I am 58 years old and have Secondary Progressive M.S." I was diagnosed in 1994 and became 100% disabled in 2005. I went from having difficulty walking ( legs and feet felt like concrete blocks) to a walker and now to a Wheel Chair. I've been in a wheel chair for over a year now. Mt disabilities include, left side weakness, drop foot (both feet) both hands numb, unable to lift either leg, extreme fatigue and balance issues. Pretty much the whole gamut however I do not have any speech or eye sight problems. I live in a very hot climate and cannot go outside the entire summer, the heat shuts me down and it takes at least a week to start feeling somewhat better.



I had CCSVI Angioplasty last week through the Hubbard Foundation and will be monitored by them for their research trial for the next couple years. It's been less than a week since the procedure and here's what I've noticed so far. Directly after the procedure my hands didn't feel quite as numb, my fatigue was less and I was able te bear weight longer than normal. The trip to San Diego was very hard on me as well as staying In the hotel. The Hotel was very nice but it certainly didn't have all the conveniences of home such as my lift chair and lift bed. Now that I'm home I'll be able to judge better how this procedure has helped. I'll stay in touch.. Let's me say one last thing.. They are definitely on to something here, I finally feel hope for those of us with M.S. The cost of the testing was $3,500.00 and is probably not reimbursed by Medicare, the Angioplasty is being covered by Medicare at this time. So total out of pocket was $3,500 not including travel and room expenses.