This is a good explanation of why Canadian MS'ers are annoyed by clinical trials of CCSVI.

http://www2.macleans.ca/2012/09/30/finally-ccsvi-clinical-trials-so-why-is-everyone-so-pissed-off/

At this time the CCSVI Alliance should be commended for doing what no health care group has achieved in the past:  pan-Canadian medical trials of a procedure that is suspect in the eyes of what was  considered the gatekeepers for ms - the neurologists.  

True, the trials are not what we would have hoped for.  But equally true is the fact that advocacy by a small group of formerly disenfranchised and marginalized patients, some of whom had been essentially written off by a society that equates able bodies with able minds, has been a textbook case of how to change a broken system.

We as an MS community are not done yet.  There are many other concerns to advocate for.  Access to your politicians is but an e-mail away.