Hello Everyone......

This is my first time EVER posting a BLOG - and I know I'm going to brag about it later on today to my young daughters and they will cheer for me saying "You go mommy!" and then they will seek out each others roll of their eyes and shake of their heads.

My 'renowned' neurologist seemingly has gotten fed up with me and my symptoms of my MS, mostly debilitating fatigue (using Ritalin and Alertec) and pain (using Lyrica, and OTC pain relievers) and incredible brain fog. Since diagnosis 16 years ago, I have been fairly able to 'control' these symptoms and mostly dealt with vision issues, the clumsiness, shorter periods of fatigue, less pain than now, etc.  I have declined MUCH in the last two years, now unable to be employable.

My dilemma: My Neurologist recently stated to me that my MRI's show a little MS and that I should be happy about that. Well, I am not happy that I cannot be employed because my body is so physically fatigued and in pain and further my once VERY alert brain becomes fatigued after about 2 hours of using it for anything more than the daily routine. Example - my brain literally shuts down after a 1-2 hour session of recalling, putting thoughts together, creating solutions, etc for an important document.

Recently I had Cognitive Testing done and scored extremely well. It was not that I was not able to recall, solve, etc. of what was required for the testing, but rather my brain became fatigued from the strenuous workout of using it for these tasks. I can feel it shut down when this happens and my entire body follows and shuts down and I must lie down to rest. My Neurologist said that cognitively I am fine. I vehemently disagreed asking him asking, "but can my brain also become physically fatigued after using it, just like when my body becomes more painful and more fatigued after physical exertion?" He says "no" and said maybe I need a second opinion about my symptoms.

This man has many designations within the MS Community in Ontario and Canada in the fields of Research and Education and he literally stated to me, "I am the professional on MS and you are telling me things that do not jive with your "little bit of MS" 

I am NOT depressed, as he suggested many of my physical symptoms indicate depression, because my "little bit of MS" does not warrant me having the symptoms that I do.

So what do I seek from posting this Blog...........I guess justification that although one has 'a little MS', that they can still have big enough symptoms that interfere with their quality of life.

Have the BEST DAY that you can Everyone.

Kindest Regards,

Lisa