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Friday, August 23, 2013 6:17 PM | Michelle Walsh Volg link

CCSVI... Voices of Progress Conference Schedule

August 12, 2013 at 11:35pm

SEPTEMBER 28-29, 2013

Sherbrooke, Quebec

Come hear leading Canadian and International researchers present the latest in new vein and vascular theories linked to:

  • Multiple Sclerosis

  • ALS

  • Parkinson’s disease

  • Alzheimer’s disease/Vascular Dementia

  • Chronic Fatigue Syndrome

  • Fibromyalgia

  • Irritable Bowel Syndrome (also Crohn’s)

  • Migraine

  • Neurologic Lyme

  • Bruxism (teeth clenching)

  • Dysautonomia

  • Autism

Cost of conference is $100 (includes Patient & Friends Day, September 28), all sessions and lunch on September 29, and conference DVD.



Tickets must be purchased in advance through:

  • Conference check in at Sherbrooke Delta hotel begins Thursday evening; Friday afternoon and evening; Saturday morning and early afternoon, Saturday late evening, and early Sunday. Times and exact location TBA.

Conference Program

Saturday, September 28, 2-5:30 PM

  • 2- 5:30 pm: Speaker sessions plus Patients & Friends Day

  • Attendee dinner & Meet-and-Greet* will follow in hotel restaurant (optional)

*Details TBA; Meet-and-Greet is at attendee expense.

Dr.   Bernhard Juurlink,   National CCSVI Society Board member, University professor & researcher,   will present “What Can Hippocrates Teach Us?    Or, Inflammation & Multiple Sclerosis.”


Trevor   Tucker,   PhD, has presented at many conferences, including the International Society of   Neurovascular Diseases. Dr. Tucker will speak on “Fluid Dynamics - The   CCSVI-MS Missing Link?” 



Dr.   Kirsty Duncan,   federal MP, is a long time advocate for Canadian CCSVI patients. Kirsty will speak   to attendees with her customary passion as part of our Patients & Friends   Day.


Hon.   Jane Cordy,   Senator, a leading voice for Canadians seeking answers and equal treatment   for CCSVI from their government. She will present as part of Patients &   Friends Day.


Joan   Beal,   leading advocate for CCSVI, will share her reflections her unique view into   CCSVI and her hopes for the future as part of our Patients & Friends Day.

An   inspirational letter from Linda Hume-Sastre will be read to attendees. Patient   advocates will conclude Saturday’s program by sharing their stories and   leading a discussion before delegates will relocate for dinner and the   Meet-and-Greet at the hotel restaurant (optional).

Sunday, September 29, 9 AM – 5 PM


DR. PAOLO ZAMBONI: Special Guest appearance   (via video)

 DR. SALVATORE SCLAFANI: KEYNOTE   SPEAKER: "The many reasons of failure to improve or hold on to   improvements after CCSVI treatment"


Dr.   Sal Sclafani has re-dedicated himself to the improvement of patients’ lives   through the study and treatment of CCSVI. His reflections on how CCSVI is   emerging as an exciting new field of exploration will be delivered in his   characteristic entertaining New York style! 


Dr. Adnan Siddiqui, Associate Professor of   Neurosurgery & Radiology and Director of Neurosurgical Research,

University   of Buffalo, will present "Premise trial - how I see it."

Sean   Sethi will present his latest paper on "Further Evidence for Venous Structural   and Flow Abnormalities in Patients with Multiple Sclerosis"

Dr. Clive Beggs, with the   University of Bradford, has co-authored several papers on CCSVI with Dr.   Zamboni. His talk is "Constricted venous outflow: Does it alter the   motion of the cerebrospinal fluid?"

Dr.   Marian Simka, is the past President of ISNVD and has been researching CCSVI since 2009. Dr.   Simka will present “What's new about the concept of CCSVI in 2013?”

Dr.   Bill Code,   MS patient, National CCSVI Society Medical Director, brain researcher, and anesthesiologist,   will present "Recent Progress in Brain Recovery"

René   McKay,   Director General of the MS Association in the Eastern Townships (Québec),   will speak on ASPE, its rehabilitation programs and work with the MS   community.



 Matt Sanchez from   AIM2WALK will   present "Advanced Rehabilitation Strategies Pre & Post CCSVI"

Dr.   Stephen Fry is with Fry Laboratories, dedicated to the research of chronic disease and   infection. He will present "Evidence of Biofilm   Forming Protozoans in the Human Vasculature"

Sunday will feature a buffet lunch, snack items, and   beverages (included)


Raffle of personalized item donated by Dr. Paolo   Zamboni and Silent Auction winner announcements to follow completion of Sunday's sessions.

The National CCSVI Society is a volunteer driven, charitable society dedicated to improving the lives of those affected by neurovascular disorders, including CCSVI, primarily by providing information and support, research and education.




Twitter: @CCSVI_Society

Reg. Canadian charity: #833497407RR0001

We are an all-volunteer organization supporting research and education for free or at minimal cost to patients and families. Tax deductible donations graciously accepted through our website or by contacting us directly.