CCSVI Alliance is dedicated to educating patients with research-based information, providing tools for patients to advocate for themselves, and supporting medical professionals' exploration of Chronic Cerebrospinal Venous Insufficiency (CCSVI).
CCSVI Alliance began with the efforts of individuals who are intimately familiar with both Multiple Sclerosis (MS) and CCSVI. We live it. Our levels of disability range from mild to severe; we are or have been on every pharmaceutical prescribed for MS; and we are active in dozens of organizations, websites, and blogs devoted to MS. Based on our personal experiences and the available scientific research, we became and we remain committed to the exploration of CCSVI.
CCSVI Alliance members are literally part of the investigation. We have undergone nearly every test related to CCSVI, including Magnetic Resonance Venograms (MRV), Doppler exams, Magnetic Resonance Images (MRI), Computerized Tomography scans (CT), venograms, and Susceptibility Weighted Imaging (SWI). Some of us are awaiting treatment; others have “run out of wait” and have already undergone angioplasty or stent placement.
Although a small group of patients and caregivers created this forward-thinking organization, CCSVI Alliance now includes scientific professionals from multiple disciplines as well as other interested individuals.
After we launch our website, CCSVI Alliance will continue to keep this pge current with the latest research, emerging practices, and patient perspectives. In addition, we will attend conferences, speak with the medical and patient communities, help bring together patients and doctors, and connect medical professionals with one another.
It is an exciting time for CCSVI and MS. Please join us in opening veins and opening minds.
info@ccsvi.org media@ccsvi.org treasurer@ccsvi.org
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