Hi- I stumbled across this group after doing a little research regarding our son's left IJV stenosis & a dilated right IJV. He is only 22 months old & we are bounced around between doctors unsure if this is a concern or not. Anyone have images of their cardiac MRA or a CT?
Side note- his brain MRI noted a follow up MRI in 8-12 months to see if he has dysmyelination or incomplete myelination. We are nervous about this because he has a ton of airway issues as well & struggles with airway collapse when sedated (3x now in less than a year) & requires intubation.