Arrived to NYC and the ISNVD Conference www.isnvd.org. The executive board invited attending patients to an informal meeting where we "brain-stormed" ideas on ways to include and communicate to the patient community new research and treatments to all those affected with the CCSVI phenomenon including normal healthy controls and those with neurological disease. Dr Mark Haacke spoke briefly about international imaging research (of which he is a principal investigator) shows CCSVI in Parkinson's. He will be sharing the study in his presentations.
Questions?To you the stakeholders in your disease process, would you welcome more direct information from the ISNVD (i.e webinars, interviews, editorials). Would you become a member ( if dues are financially within your budget) in order to take advantage of new information and debate with the ISNVD professional community.
Let's start a dialogue ... let the Alliance know your thoughts, suggestions, pros and cons. Comment below -- we will be discussing in the next two days. Please, please --- this is not the forum to ask anything related to your specific health issues.
Thanks,
Sharon Richardson
Presidential

ANNOUNCING:

CCSVI Alliance to launch a Matching Donation Campaign to support the International Society for Neurovascular Disease (ISNVD) 2016 Conference. CCSVI Alliance believes the ISNVD is providing vital and essential collaborative research which will help us understand the vascular connection to diseases of neurodegeneration. This is why we are committed to supporting this group.

On March 1, 2016 CCSVI Alliance will invite our patient community to join with us to provide an educational grant to be delivered to the ISNVD 2016 Conference.

"The ISNVD is dedicated to the dissemination and review of new concepts in etiopathogenesis, novel diagnostics and modes of therapeutic treatment in the diseases of the neurovasculature. The society does not endorse specific products, treatment modalities or procedures but encourages the free exchange of information which may lead to peer reviewed research and clinical studies."

During the month of March, we will be sharing more information on the exciting research and speakers who will be presenting at the conference and their focus on “How The Extracranial
Venous System Influences Neurological Disease”.

http://www.isnvd.org/newyork