I saw my neuro today about my scar tissue in my neck.I have not seen him in 3 years but I have kept in touch with him through emails.Telling him every treatment/procedure/surgery I have done and what my results have been.I was there for 2 hours. I showed him how I am able to stand when I stretch my spine other wise I cannot lift my butt off the chair at all. They ran physical tests, one was for arm strength. I showed them depending on my position my strength changes dramatically. I told them about about Dr Rosa and Dr Flanagan and what he found on my upright MRI, extreme cervical lodosis, about CSF and in my case it is not returning from brain back to my body correctly. About CSF leaking into my brain causing NPH, pointing out that I have high ocular pressure but no sign of glaucoma about it hitting one of my ventricles that regulate body temperature, reason for the hot brain... At the end of it all he wants to see only peer reviewed papers.He introduced me to one of his colleagues who seemed genuinely interested in the CSF theory. I gave him Dr Flanagan's web site. But then the 2 doctors look at me and said "how do we fix this CSF problem?". When I said it would be different for everyone as the blockages would be in different places and what is causing it would be different too. Gave the examples of Eagle's Syndrome which they asked "what is that?" And of a friend who had a roof fall on his head, and his ligaments are torn in his neck. But they still did not get it, kept thinking this is a disease and fixing the CSF by way of the brain.
So he gave me a referral to a ENT doctor to have my neck checked out.