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Sunday, November 20, 2011 4:44 PM | CCSVI in MS Toronto Volg link

Morning All,

I have been looking forward to today's Expo as I knew back in September when it was announced while in B.C. how important a day Nov 21 2011 would be. So many of us are still suffering and to those that have had full benefit of a simple angioplasty procedure for some to regain their lives that is not allowed or approved in certain Countries that have Healthcare for its citizens like Canada, U.K. and Norway.

I was given an opportunity to speak at today's Expo and probably should have taken the opportunity given to me. At the time when I was contacted I told myself "What information do I have to bring to the Expo that would have people interested in hearing"? Also enduring the Restenosis aspect of CCSVI, the constant joint pains and Rd. II procedure indecisions so many of us have. I did not have the confidence even to go to the Hospital last week when I should have after a fall, as I have zero confidence in our Health Care System, let alone speak during a live event in front of hundreds of people.

As so many of us MS'ers know every day we awaken, we never know what type of day we will have but our online community will always be there to help in support and sympathize with what the day brings.

Today, tomorrow and last night marks a great anniversary in the lives of so many in not only the MS world but how CCSVI has touched thousands of us around the world. To 1 Admin of the page CCSVI in MS Toronto, it has been an incredible ride. The places I have traveled and people I have met on this journey that I can now call my friends has been an incredible ride and when deciding on whether or not to speak "Live" at the Expo was a little much for this simple MS'er person to handle emotionally.

Two texts I have received will always be entrenched in my memory and Cell Phone. "watch CTV at 7:00 tomorrow they are doing a piece on MS" and "I'm in the arrival hall when you get off the plane" We will never forget the journey which took me to Hamilton Ontario on Feb 7, 2010 to catch a glimpse of Dr. Zamboni. As Wayne pushed me to go that day even just to see him in a cab or limo, boy did I ever think we would be where we are almost 2 years later.

As a lot of you know this upcoming week is my 1 year Anniversary Nov 23, 2010 and also a lot know I am still entrenched in my own battles in the aftercare received from my Neuro and GP which has taken a lot out of me physically, emotionally, these past couple of weeks.

With the online battles that have been happening recently I was worn out, turned off of sorts, beaten up emotionally etc. but I am happy to see today's event that will get those of us on Facebook back in the direction we should be heading that was first created by Joan, Sandra and Wayne in 2009-2010. I have often heard from my Co-Admin Wayne" I'm just a simple guy sitting behind a computer" well Wayne "I'm just a simple person with MS seeking out information about my disease." Together we are 2 simple guys sitting behind computer screens sharing information and communicating with people around the world.

Also one of his comments to me one day was "Jamie I'm getting tired of receiving emails of people dying and their families having to remove their F/B profiles" To those that are looking down on us I am sorry we did not get this done or "approved on a compassionate basis" in time to save you and your families lives. We are thinking of you all today !!!

I think we are definitely more than a "cult" as some in the respected MS world think of us to be.

We also have PHD's

We also have Dr. in our names.

We also have Doctorates

We also have BComm's

We also have BA's

We also have completed High School.

We also have become Company Presidents.

We also have become Company Director's.

We also have become Company Area and District Manager's.

We also have become employees.

We also have built our own companies.

We all have something in common.

We all have a will to live our lives as a human being which was given to us.

This is a battle I or any of us did not request to join, but rather I am proud to be a part of this social movement to take the corporate piece out of healthcare as it destroys too many lives to have those 2 entities together.

I wish everyone a good Expo today, tonight and tomorrow. Thank you to NCS, Sandra and her team. All the speakers and others for putting this event together that will make history as was the case in 1969 with Woodstock.

Warm regards,

Jamie

Now finally for my check list:

-Speaker lineup times

-Hors d'eouvres and snacks for you and your and guests

-Jammies and Slippers

-Beverages

-Notepad and pen to take notes

-Questions to help in participation

-Spirit and Well Being

-Last but not least your Computer, our most important tool and weapon in this battle of a simple angioplasty procedure being performed around the world on a daily basis to improve the quality of a person's life!!!