I’m reading the MS Society Facebook site. They’re boasting once again about the million dollars they may give for clinical trials. Only if they like the results of studies that the MS Society has sponsored. So lets all celebrate!

But will they ever like the data from these studies in a year or two? Will the results end up like the German study that never found any evidence of CCSVI?

Also, if they stack the deck against CCSVI once again, just like they did with the CIHR in August, that same voting group of “experts” will never support anything. They have a vested interest in their precious autoimmune theory, and way too many ties with big Pharma to do the right thing. Will we see their kangaroo court of Neuros evaluate a vascular condition, while vascular experts are not allowed to participate? If nothing changes, I predict they will do the same thing again, and their delay tactics will continue.

For nearly a year now CCSVI has been in the media, with coverage from coast to coast. But so far what has the MS Society really done?

When we saw CCSVI on W5 back in November 21 2009, the MS Society went out of their way to try and shine a very negative light on what is the most important breakthrough in the history of MS.

Their talking heads made their cameo appearances in the media. One by one they talked about the dangers of angioplasty, and the fact that there is no proof.

Then their supportive Neuros lined up, one by one, to bash CCSVI and Dr. Zamboni. They called the theory ridiculous, and simply brushed the whole idea aside. I think many just hope all the fuss over CCSVI, will just go away.

In fact, there are a whole cast of characters in the MS Society nationally and provincially who have not budged one inch since then. They still don’t buy this blood flow theory. Every so often a memo leaks out, and a new dirty little secret is revealed.

Now a year later, they are still really saying the same thing. No movement forward, because there is no proof. No trials, because it’s too dangerous and the data they look at does not support the need to embrace any CCSVI treatment, even for those who are dying without hope.

They take the time to talk about how awesome they are. Their million dollars is going to do so much good. But as its stands it’s just a PR exercise that no one is buying. They are simply making a fool of themselves, and they don’t even get it yet. They just don’t get it!

Canadian’s have been receiving the simple angioplasty treatment for 10-months, and the MS Society can’t even be bothered to create a simple registry, documenting what has already taken place. Precious data has been tossed aside. Evidence to help support CCSVI has not been collected.

So we sit here today. Time is moving on. MS is not waiting for anyone. Month after month, their inaction speaks volumes, more than they will ever understand.

If you were to ask the MS Society how many people have received treatment, they don’t even know. They can’t even answer this most fundamental question because they couldn’t be fucking bothered to look.

They simply have no clue. They don’t want to know the truth about CCSVI, and that’s something not worth celebrating.

WaYnE

100 Days of Celebration:

http://mssociety.ca/100days/default.htm?day=53

http://www.facebook.com/MSSocietyCanada/posts/159464104090036