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Sunday, February 27, 2011 10:35 PM | Ken Torbert Volg link

As all MS'ers on this highway, no one ever asked for a diagnosis of MS except to experience life and what it has to offer. The past 12 months have been an incredible journey and now the hard work begins. On a personal note you can see my skating skills and technological skills. I need a lot of work but in a way I have lost 5 years of my life. I must work to recuperate what the disease of MS has taken away from me. From the beginning of what CTV and Avis Favoro introduced us to Dr. Paulo Zamboni "Hope" can be within reach of beating this disease.



Upon reflecting now it is time for others to begin their journey and I do hope I have shown that yes it can be done. This time last year I was making final plans to visit a great friend in Norway to find out more of CCSVI and MS in general from the #1 per capita region in the world whether this "Hope" we saw was possible. I can tell you first hand, "yes it is." With the right support from friends and family and the right plan, Progression of this horrible disease CAN STOP.



CCSVI can be the right highway to pursue and soon we will get there where this WILL become to stop MS from becoming SPMS or PPMS. I do feel very strongly about this maybe not tomorrow for secondary or Primary as has to become studied officially for our medical research teams to record the procedure to change governments and those that make healthcare possible for this very simple $1500 procedure and to stop paying out thousands of dollars to Pharmaceutical companies to push their "useless" medications that we have all seen over time don't work.



The idea of a simple angioplasty can stop progression in so many that have experienced this "I think close to 13,000 now" where will we be in another year's time? Where will our research community that want to help take this is incredible to watch. Dr's like McDonald, Simka, Zamboni, Code, Haacke, Hubbard, Godley, Siskin, Soares all see this as the highway moving forward. There has been a conception that money is to be made off sick people that has been around for over a century. When it comes to one's health the Pharmaceutical industry and its medical Doctors have taken this to an extreme that has NEVER been witnessed before and we are putting a STOP to this by bringing Doctors information from places like CCSVI in MS Toronto, YouTube and Facebook for a treatment that just makes sense, cost effective, and not damaging like treatments such as Tysabri.



Neurologists are having a hard time accepting this highway that their patients are more informed than they are. Should this be after the thousands of dollars they have spent in MED School achieving MD status and later moving onto a specialty of the brain. It is time for some of them to start stepping aside as by holding back CCSVI from their patients they are holding their patients back from living a life that should be one to live out how they choose and have that opportunity.



As I take a step back in my road to recovery and attempt to find a career that I can have with MS as I will always have MS but for now it's about experiencing what life has to offer as I FIRMLY believe I have stopped progression and now must work on getting back the 5 years I have lost. This starts tomorrow and I do hope someone will follow, never to let this therapy fall away as so many waiting for their pensions have thought of.



I have met so many great people around the world that have helped me get to this point (especially you WaYnE). We have shared a lot of laughs but most of all we have shared "a lot of tears of joy" and I sincerely hope the information and videos I have done over the past year have helped.



Jamie



"just a simple MS'er trying to pass on information"




Pre CCSVI Treatment Skating Video:


http://www.youtube.com/watch?v=IzrEmZwS2RI



Post CCSVI Treatment Skating Video:


http://www.youtube.com/watch?v=N9jwSJpeeUo



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