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Sunday, April 3, 2011 3:36 AM | Anna Wise Volg link

It never failed... if I got sick I relapsed, badly. Always relapsed - but that was before my liberation procedure.



For example, in late 2009 was incredibly sick with a 2 month long sinus infection and ended up with optic neuritis.  I got about 95% of my vision back after going on IVSM and being blind in that eye for about 3 months. Before my liberation procedure, if I got sick, I tended to relapse with new, bad symptoms about a week after the illness ended.



I am now post liberation (Feb 8, 2011). Well, two weeks ago, I was very sick with the flu and bronchitis. Then three days ago I started getting my optic neuritis symptoms back, but they were very mild. Just a little fuzziness and some scotomas.  Called my neuro and she offered IV steroids, and I accepted. My eye feels better already - I have always had very good results with steroids. I don't feel as though I have restenosed because I have no new symptoms and I am still walking great, with great balance and have no more spasms. I know I still probably have iron deposits in my brain which need time to slowly flush out.  I am just having a little activity on my optic nerve, which I totally feel is a result of my being ill. But I do feel as though this would have been insanely worse if I hadn't been liberated. Does that make sense?



And my main question with all of this prelude is: Has anyone needed to go on steroids after CCSVI procedure due to old lesions becoming mildly active again following an illness?