I told the doctor about stopping taking Gilenya.  And she completely understood.  And she asked me about how I was doing.  I constantly referred to improvements from CCSVI that Gilenya compromised.  Walking was the primary, but leg strength was the biggest complaint.  They asked about hands, which were okay except for loss of real flexibility in my right ring finger. Bladder/bowel? I told them it was okay since CCSVI.

So the Neuro did something that we did not expect.  She complained in a good way.  Why did you not complain about the problems earlier?  My wife and I both told her we do not call with every problem.  And the setbacks from this were so strong.  Dizzy, falling, loss of mental sharpness. 

The doctor went aggressive. 5 days of in home steroids.  And if that does not work, I get a week in the hospital for plasma electrophoresis.  Basically, this has been presented to me as blood cleansing.  The procedure includes installing some tubes in my chest and pumping out old blood, pump in fresh cleansed blood.  The aggressive approach was refreshing from my doctor.  My wife and the nurse were very in favor of the aggressive approach.

After 2 days of steroids, I feel much better.  Walk is improved even though I still SHOULD USE THE CANE.  I get feeling better and I get arrogant.  The steroids do impede sleep.  So I woke up at 3:30am and decided to just start my day.   And I did the normal things, feed animals and such animal husband stuff.

And I tripped. Not bad, but I fell down on my arm with a needle on it.  Despite that, I got up without swearing or cursing.  Right leg was still weaker.  But I got up and finished my tasks.

I think I will use the cane the rest of the day.  I am so stubborn. 

The good part is that I am strongly considering the procedure.  If I were perfect from the steroids, I would not be given the option of the plasma procedure.   Because of the fall I should have the option for the aggressive procedure.   

So now I want to see what today brings.  I have another steroid upgrade.  PT will come later and he will document the fall. 

I just want to get better.

And for the first time since Gilenya met my mouth, I do feel better.