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Monday, July 11, 2011 11:41 PM | Karen & Garnet Reid Volg link
We have jus lived through the worst 4 weeks of life.  My wife Karen had CCSVI in September and never really did improve.  She has been fighting this disease for four years, and has had peices of her stripped.  On June 11, she began having seizures, hardcore ones.  As a result she spent 3 weeks in Royal University Hospital and now home hospital for 2 weeks.  Where does it end?  How do you watch the person you love most disenegrate before your eyes?  We have fought so hard to keep her out of the nursing home for the past three years, now I am fighting to get her in. .... She has no memories left, and has severe cog issues, and is not mobile at all.  Before this last stay at least we were home, and she could swivel transfer and we could take care of her.  Now I hold her hand.  She just celebrated her 48th birthday in the hospital.  Happy Birthday.  I hate this disease, and right now I hate this life.  Sorry to have exploded, just wish I knew which way to turn, or what to do.