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Tuesday, August 30, 2011 3:30 AM | Linda J. Rousay Volg link
I have said many times that until the procedure is standardized and better comprehensive care is available regardless of which clinic, doctor or hospital we use, there will be inequity in the treatment. I don't bash any CCSVI doctors on the Internet and have no intention to start now. I have said that some are more knowledgeable than others and that may reflect in some of the results. I can't possibly know of every doctor or clinic, nor do I know what they do unless other people tell me. Like everyone else, I have to weigh how much credence I give someone's opinion. I've been told a number of times when someone disagrees with what I have said, but I do try to distinguish between my opinion and an established fact. Given that this procedure at least publically is fairly new, there are only so many verifiable facts out there. The best we can do is share our experiences or relay that of others as honestly as possible. A few facts I think I can back up are these:

1. Most of the CCSVI doctors test for and clear the inner jugular veins and the Azygous vein. Some do other veins such as the iliac, Sigmoid Sinus, renal, etc. Speaking only for myself, there was a definite difference in having some of the other veins done.

2. Stents are controversial , used by some doctors , and not others. The same doctor may feel the need to use them on one patient but not the next depending on what they see.

3. All catheter sizes, design, and materials not the same with all doctors, neither is the pressure they use. Stents are not alike either.

4. In any field of medicine there will be many levels of education, talent, expertise and methods from doctor to doctor.

5. Up to this point, I don't think that many vascular surgeons or interventional radiologists are experts in the treatment or nature of Multiple Sclerosis symptoms. That's no slam against them, they probably don't deliver many babies either. That's why we have specialties. I believe our condition cannot be fully addressed by only these doctors. Nutrition, hematology, internal medicine, endocrinology and neurology are at least some of the other areas that IN MY OPINION, are needed for our total care. Our problems are too complex for us to expect the doctors who do the procedure to be able to address. Some of these doctors disagree with each other, just like any other specialty. There is valid reason for second and third opinions.